Hi friends!!
Wow!! What a month we've had since our last post..
My mom has been crazy busy with helping my dad/Real Estate and working on her project (www.inapikle.com) and OF COURSE..taking care of me!!
I weigh a little over 16 pounds...and I am getting long..
I am still eating by my g-tube, and some days I will eat from the bottle and some days I won't. I still like sweet potato's and my family gives me all sorts of tastes of other things too..
Since my mom replaced my button, my new one has been keeping her busy because it leaks...instead of cleaning and changing the tape "once" a day, she does it multiple times a day some days...
My belly doesn't smell very good, but she tries to keep it as clean as she can...
The old button was too small, but she thinks this new button may be just a smidge too big...I just need to gain more weight and then it will fit perfectly and quit leaking...
I know that there is something in my stomach and I want it OUT! I pull on it and I have FAST hands...if my mom doesn't have it taped down really good, I get ahold of it and pull hard...there have been a couple of really close calls of me de-tubing myself.
I'm still pretty floppy..Some days I will hold my head up strong and some days I'm just tired...
BUT...I still love to arch as far backwards as I can and I am strong with that...
I prefer the right side of my head and wiggle my way back into my "preferred" position as often as I can get away with it...
My head is getting crooked, so before my soft spot closes, they want to put a helmet on me...we'll see what's going to happen...
As for developmental...I am focusing more on items placed above me...I do use my hands to "bat" it around and sometimes I will try to put things in my mouth IF they are "close" to my mouth already...
Cause and Effect are not concepts I understand just yet..
My parents do wonder "where" I go sometimes because I just seem to be in my own world...I will look "up" or "off" into the distance and my hands remain down, my back remains arched and my head to the right....it's a pretty interesting sight for them...BUT...if only they could read my mind OR I could talk, right? Oh the stories I would tell them...
I still make little growling sounds for my laugh and my voice is about the same..still pretty quiet...
I've been hanging out with my cousin Sophie who is a few months younger than I am and I just like to have her laying by me...this way I know I am not alone...
OR...
I want to be picked up and carried around the house with my family...
I had a couple of episodes where I have thrown up (which really freaked my parents out because I had the Nissen surgery and I am supposed to have a very hard time throwing up) - - - but...it's probably a good thing that I "can"....because this means that I "can" throw up if I need to...
My reflux isn't as it once was...some days I will go without refluxing at all...some days, I have a few episodes, but my Prevacid helps me...
I've had a cold in my chest for over 2 weeks now and my cough sounds like I'm barking...My mom knows I don't feel well because each time I cough, I cry...I haven't felt much like eating either...maybe this is why I don't want the bottle...I'm not sure "why" I'm not kicking it, but I guess that it's just taking me some time to get over it....I've been extra cranky at times..
BUT...when I do feel good, I love to smile and to be played with...I know my family very well and I know if they aren't around...I do NOT like to be left alone...ever..
My mom still is at home with me and she's REALLY liking it..
It's taken her a few months to get used to not working outside the home, but she is so thankful she can be with me...Some weeks, she doesn't leave the house...but she's okay with that...
My brother and sister are getting used to having her home too...I guess I was a blessing in disguise for them too....
My mom stays positive and happy because we have the best family and friends who continue to call, email, text, send cards, gifts and encouragement.
Thank you to all of you...
I know that I'm not an easy baby to take care of sometimes, (but I'm worth it)...the right person always shows their love at just the right time to us...
We are so grateful and blessed....
