It has been so long since my mommy updated you.
So, let me give you the 411 on what has been going on since my last update.
January was a pretty good month...my parents tried mixing all sorts of "flavors" into my nasty tasting Elecare formula, but I just didn't love their inventions.
But then....I discovered Chocolate Pediasure & folks...let's just say that my world changed. I couldn't get that food in fast enough.
I started eating this chocolate everyday and I was doing great!
I got to the point where I wasn't eating any food "in" my tube during the day...I was eating it all by mouth!!
The tube feedings were reserved for at night while I was sleeping.
I was holding my own bottle and loved this new situation. (so did my parents because they could take me somewhere and just bring a bottle....awww, the simple things, huh?
Well, somehow, I caught another cold during the first week of February.
I was pretty miserable.
I coughed so hard that my reflux returned with a vengeance.
I ended up aspirating into my lungs again & catching another bout of pneumonia.
If that wasn't enough, I then came down with "metapneumovirus" too. (this is like rsv's ugly cousin.)
I went to the Doc 7 times in 2 weeks & they just didn't know what to do with me.
At this point, I had totally stopped eating and so my parents had to put me back on the tube to keep me hydrated.
They prescribed 3 different antibiotics which did nothing but...give me severe diarrhea...like SEVERE diarrhea.
So severe that they found I now had c difficile colitis and I was getting dehydrated. I didn't know a person could go to the bathroom as much as I did (neither did my mom) and let's just say that the skin on my bottom was all off from this powerful stuff....it was pretty painful.
The month of February was a rough one but we are so thankful for my feeding tube because it kept me out of the hospital. They could feed me even as sick as I was and it was a huge blessing.
In March, I was feeling better, but I still was not 100%.
My parents slowly worked me back onto my chocolate drink & I loved it.
I had lost weight when I was so sick, so my already leaky g-tube was even more leaky because it was now too big. This was even more motivation to get me eating by mouth.
As I started to get stronger, I liked to sit up if someone was holding my hands. I like to bite everything in sight and I also cut 2 bottom teeth this month.
March was a way better month.
In April, I am still coughing.
I'm not sure why I can't kick this, but I'm trying really hard.
April has been a month of progress all the way around.
I am cutting 4....yes FOUR teeth at the same time. It hurts too! They are coming in like vampire teeth, but everyone says how cute I am.
I am rolling over now.
Sometimes I get stuck, but I like to move and shake when I can. The world is a whole big place & I've got to get moving.
I love to sit up.
I can't do it alone yet, but my core is definitely getting stronger.
I am a people person and I love to get attention.
I've gained a little weight back, and I almost weigh 18 pounds.
I am on a trip with my nana and mommy to Boston, Ma.
Whew! What a journey it has been.
Getting here was like a prank show.
We had to board the plane....wait 3 hours on the runway...de-board the plane...run...run...run to another concourse...get re-routed to another state...sit more time on the runway and finally make it to our destination 7 hours late.
I was a pretty good sport, but I had my moments (as you could imagine.)
We finally made it and I met my "east" coast family.
They are very nice and I'm getting slot of attention.
Yesterday, we took a big ferry boat to Martha's Vineyard and walked around the little town.
My mommy was in her dream land and didn't want to leave (she loves the ocean.)
It has been a really great trip so far and I am glad I was able to come.
My mom started to write this post when I was sleeping, but I'm awake now and I've just dumped chocolate pediasure in my Auntie's bed, so I'd better go for now.
Love you very much special friends...
