DAY OF LIFE 153

Today is Friday..

I didn't sleep very well last night, so I am tired and so are my mommy and daddy...

It's a BIG day - full of "running" for my family...

My mommy went back to work today for a little while at my daddy & Uncle's model home.  My Nana watched me.  I love my Nana..she take such great care of me and we are all so glad she is still here with us.

My big brother's "actual" birthday was back in February, but because I was at the bigger hospital and my mommy was out of town with me for so long, my brother had to "postpone" his birthday party. 

So...we celebrated it today....

Since my parents are still pretty protective of me, I am not able to go, and my daddy will stay home with me while my mommy, Nana, Grandpa, Uncle, Auntie, cousins and all TWENTY-FIVE of my brother's friends have his party at the swimming pool.

Next year, I will be better and I can go too.

After the birthday party, my other Uncle (dad's brother) and Auntie came to watch me so my "whole" family could go to the Ironman Kids Fun Run because my sister and my cousin were running the 1 mile.

My family was glad to have the opportunity to be "together" to watch this event and they were thankful to have someone stay with me too!!

It was a good day..full of running from one place to the next...

What blessings we have!!!

Keeping the faith...

DAY OF LIFE 152

Today is Thursday...

I spent quite a bit of time with my Nana today..

I had my moments where I was hurting, and thank goodness for my binky because that is the one thing that will always help me feel better...

BUT...

I "overall" seem to be feeling better and better...

I was able to meet my cousins (my mom's brother's kids) for the first time tonight...they have only seen pictures of me because they were not allowed in the hospital..

They already love me and my Auntie does too..

I am so fortunate to have such a loving family who is happy to have me here...

Feeling so thankful!!

DAY OF LIFE 151

Today is Wednesday..

I had THE BEST DAY!!

I rested well and I was awake well too!!

It is totally obvious when I feel better and my family is feeling so happy!!

My brother is home today from school because of his eye, so he spent a lot of time with me.

What a terrific day!!

YEA!!!

DAY OF LIFE 150

Today is Tuesday...

It was a hard day..

I refluxed more today than I have in a few days & I cried a lot...

My cry is still pretty silent and I sound pretty sad...

I guess we all have hard days..

But..I'll take these "hard" days any day of the week..

My brother got sent home from school today because he got hit in the eye with a flying disc of sorts and his eye started to bleed..

The eye doctor said that the "structure" of his eye was not damaged...THANK GOODNESS!!

We are all very blessed!!

DAY OF LIFE 149

Today is Monday and the home health care nurse came to visit me..

I officially weigh: 9 pounds and 5 ounces!!

I am a big boy from the 3 pounds 14 ounces I once was..

My mommy is going to increase my food today and see how I do..

I am doing so good...super grateful!!

DAY OF LIFE 148

Today is Sunday..

It was "boys day in."

Zachary and my daddy spent time with me today so my mommy, sister and Nana went to church, hiking and to lunch too.

Reflux was at a minimum today and I am SO SO thankful!!

DAY OF LIFE 147

Today is Saturday..

It was a day full of spending time with my family...

I'm starting to feel better and reflux is minimal..

Feeling pretty grateful that life is so great!!