Today was a HARD day.
I was dressed in such CUTE little Santa Helper clothes today and then I started to reflux AND reflux AND reflux.
They are trying to "slow" it down any way they can.
I am on a TOTAL incline in my plastic container ("L" position) because if I go "flat" or get "moved"...I reflux.
If I get my diaper changed, the "pressure" on my stomach makes me reflux too.
Then, my reflux gets "stuck" in my throat and I can't cough it up AND my oxygen saturation goes "down" so they take a little tube (like when you go to the dentist) and "suction" down my throat to get the "stuck reflux" out so I can breathe...
BUT...that agitates me and I reflux AGAIN.
This is a VICIOUS Cycle and my throat is getting sore from all of the "reflux" AND "suctioning."
They've decided to put me on a "continuous feed" all day long and hope this ALONG with my "new" position will help me.
On another notes, my blood sugars remain level thanks to "prayers" and diazoxide so they took out the picc line that was in my right arm. I was glad.
It's a hard day for my mommy and daddy (and Nana) when I throw up so much. It wears us ALL out.
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