I'm Three

I'm Three

Hebrews 11:1

"Now faith is the substance of things hoped for, the evidence of things not seen." Hebrews 11:1

Saturday, March 19, 2011

DAY OF LIFE 11

WOW!!  Today was a WAY rough day...for us all.

I am still refluxing badly.

They tried to "push" the "NG" feeding tube into my stomach a little more to see if this would help me keep my food down, but didn't seem to make a difference, so the "plan" is to place a new tube that will be "inserted" further down into my lower intestines tomorrow. (This is called an "NJ" tube because it goes from my "nose" to my jejunum.")

The "suctioning" merry go round took place again today and my throat is getting really sore.  I already have a very soft cry and this isn't helping me get a stronger voice.

I like to keep them guessing, so of course, my blood sugars have dropped again..so the plan is to "increase" my Diazoxide.

BUT...even with all my "refluxing" - I am gaining weight...I weigh 4 lb 2 oz.

My mommy and Nana were here all day today and my daddy came to visit me after work. I know it's hard for them to "watch" me be in so much pain, but I am glad they are with me.

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