benwriteshisownstory: DAY OF LIFE 34

Monday, March 21, 2011

DAY OF LIFE 34

Today is a HUGE, HUGE, HUGE, MONUMENTAL DAY!!!

I sucked my Binky!!
I sucked my Binky!!
I sucked my Binky!!
My mommy, daddy and Nana were SO happy, they cried!! I didn't know what was going on and why they were so excited...I felt like sucking my Binky..so I did. (You would have thought they just "won" the lottery with how excited they were!!)

Today is my mommy and daddy's 16th wedding anniversary too..what an AWESOME present!!

It was a great day!!

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About Me

Hi friend! My name is Benjamin. I was born on 12/4/2010 - 8 weeks premature. I am very "unique" as I have a 9/14 chromosomal translocation. Basically what that means is that my chromosome #9 has a "deletion" and my chromosome #14 has a "duplication." We are not "sure" what this translocation really means longterm for me and I have been told that there are no "documented" cases of people like me, so essentially, I am "WRITING MY OWN STORY." My goal in doing this story is to offer hope and words of encouragement to other families in a similar situation and also to find other people that may be like me. More than once, it has been asked "how" my translocation happened. My parents figure it happened...On purpose..God doesn't make accidents, ever. I am here for a specific reason; I have been created complete and perfect, just the way that I am. Thank you for joining me on my totally amazing journey of life (that I take at "my" own pace!!)

A Heart FULL of Thanksgiving...

I am so thankful for the love and support that I continue to get everyday from my awesome family and friends. I appreciate
your unwaivering faith in my wellness!

The title of my blog ("benwriteshisownstory") was actually "inspired" by the medical professionals that have helped me. I am very grateful for all of the Doctors, Nurse Practitioners, Registered Nurses, Respiratory Therapists, Specialists, Surgeons, and Staff that have medically treated me along my journey.